07 February 2012

a $589 giveaway!

i cannot find the words right now. these generous angels are all banding together to make a big impact.

we will be taking entries until Tuesday February 14th, and a winner will be announced on Wednesday February 15th!

with this BIG giveaway, valued at nearly $600, you can win the following:




If you are new to the blog
here is a quick snippet of our story
and just why this giveaway is so important.
We are in dire need of NEW research with this disease
and I am ready to make it happen.
I recently wrote about
My daughter needs me here on earth with her.
It is as simple (and as heartbreaking) as that.

I am a 28 year old mother, living with a rare (1 in 250,000) disease that is ultimately fatal. The disease is called cystinosis. Many of my friends fighting this disease have not lived to see their 30th birthdays. I have a beautiful, little ball of light who turned two years old last week. Because it is so dangerous for women with this disease to go through such a high risk pregnancy, she is 1 of about 10 in this world.

 Cystinosis is a relentless illness that attacks every cell in the body. Treatment is a drug that has similar side effects of chemotherapy; this drug must be taken every 6 hours, of every day. This medication slows down the progression of the disease, but there is no cure. Eyedrops must be done every hour one is awake, in order to prevent blindness from the buildup of cystine crystals in the eyes. Cystinosis causes kidney failure, diabetes, stunted growth, muscle wasting, problems swallowing, and many other complications. 

You must be a follower of the blog to enter.
This is mandatory, along with the purchase of a raffle ticket! :)
Both actions count as one entry.

To follow: Find the 'join this site' button
on the right hand sidebar
(right underneath the about me section)
purchase a raffle ticket to win ALL the above prizes
your "ticket" is a $10 donation to 

you can donate HERE
HERE through Paypal
(mention me, Tahnie if donating through Paypal)

Multiple entries may be purchased if desired.
A $20 donation is two entries, $30 is three entries, and so on.

Leave one comment for every raffle ticket ($10 donation).

Giveaway is open to U.S. residents only.
(Thank you for understanding!)
Giveaway will end February 14th, 2012
Winner will be picked at random and

announced here on the blog on
February 15th, 2012.

Thank you from the bottom of our hearts!
We are such a small, small community
(only 500 of us in the U.S.)
brings us closer to better treatments
and ultimately a cure.

and good luck (!!!!)

this isn't a part of the giveaway
but, could you 
on top baby blogs?
the more votes, the more awareness for cystinosis!
you can vote once every 24 hours.

thank you.
thank you.
a million thank yous.



  1. and... ticket #3! I hope this donation is able to help you spend many more years with your little one. She is beautiful and it lucky to have a Mommy who is willing to fight for more time with her. You are an inspiration to everyone fighting a battle with a disease.

  2. One! I did it via Paypal, so my name will show up differently. FYI! :)

  3. Two! I did it via Paypal, so my name will show up differently. FYI! :)

  4. Three! I did it via Paypal, so my name will show up differently. FYI! :)

  5. Four! PS - I'm following, but privately.

  6. entry one. (paypal is ltblinds)

  7. One ticket hope you make your goal!!!!

  8. One entry. An inspiring story! I stumbled across your blog by a post you left on Lil Blue Boo. I hope that they continue making progress with this disease. You and you your beautiful little girl will be in my thoughts and prayers. Keep up the fight!!!

  9. So I just cried. Quite a bit actually. Bless you from the bottom of my heart for blessing me. For teaching me through this sweet blog that there is a god. And he is keeping you alive. I am fifteen and I blog over at this little joy: http://www.thellielife.blogspot.com/

    although I cannot afford to purchase a raffle give away I wanted to let you know that I did share this on my facebook wall to my 100+ followers. I am sending all my love your way and I pray that you thrive.

    What an incredible cause.

    Cannot wait to continue to follow on your journey.
    Keep fighting....and I will keep praying.

    Much much love, Ellie

  10. i follow your blog and donated $20 so this is my first entry.

  11. here is my 2nd entry. thank you. sending prayers ur way.

  12. I follow your blog and this is entry #1

  13. entry #3 - you'll be in our prayers as well!