15 November 2012

little specks of hope

the weekend was good to us! bringing in freezing temperatures and snow but also scooping us up in her hands as she said "be quiet, be still, make yourself cozy, revel in the magic of your little family."

we did just that.

(yes, my weekends speak to me and are female most of the time. aren't yours?)

friday night was a dreamy visit to look at a house. it was an older home and filled with charm. the freshly fallen snow cast a soft christmas feel over everything. it was cozy and exciting to imagine our little family living out our days there! while it wasn't the house for us, i love that burst of passion that soars through my heart when rory tells me he found a good one. who knows if we will find a house before the end of the year. our house hunting has been an extremely long journey, filled with detours, potholes, and dirt roads...but oh what an adventure! this house had so much character and reignited that desire in me to find a place i can fill with whimsy for sookie. it also reminded me the smallest little speck of hope can turn into a roaring unstoppable force within minutes. i need to remember that for all facets of my life!

saturday we were lazy and filled the day with cuddles, snuggles, family tickle wars and sweet kisses. i ventured outside with sook where she decided to have a snow ...and MUD party! perfect.

i adore seeing her love for nature contrasted sharply up against her intense love of girly clothing. i envy this kiddo's wardrobe, i kid you not! ha. i love that she isn't afraid to get dirty exploring her surroundings. i love that she wants to know every little thing about this wonderful world. i love that she views all bugs as instant best friends and doesn't bat an eyelash when she sees a snake, but whips her lightning quick hands into action to catch a new buddy. (she caught about four snakes this summer in our front yard!)

we went on an adventure to the children's museum on sunday. that place flames my inner child and endless curiosity. i had as much fun as sook did and I believe rory, and my mom and dad did too! you can't help but let go and indulge in the wonder of play when you are surrounded with prompts and props! when my dad started organizing the giant play kitchen, i burst into a fit of giggles.

this week has been more blood tests to stay on top of things, to be very cautious and make sure i don't have lymphoma, to check my inflammation markers, to run liver functions. all that happy stuff! tuesday i was struggling to get along with reality, so finally i simply dropped everything and went to a movie with sookie and my momma. that little escape turned out to be exactly what i needed to get my big picture focus back. i like it when i listen to my inner authentic self, she never has an evil ulterior motive. she wants happiness, pure and simple; and for me to keep my eyes and energy focused on the prizes.

we are holding on to little slivers of hope today; that my car will be fixed so i can have it when i head back up to the hospital (a 45 minute drive) on monday morning. that we can pinpoint all this chest and abdominal pain i've been having lately. that my labs come back all within normal range. i'm also being a little greedy and wishing that i will get into a study at the NIH in bethesda, maryland, for an experimental treatment for muscle wasting in people with cystinosis. 

crossed fingers today and keeping our focus on the big picture!

what are YOU hoping for today?


  1. Very cute.^^
    Maybe follow each other on BLOGLOVIN and GFC???
    My Blog

  2. Thanks for stopping by my blog! Goodness, you are such an encouragement! What an incredible story you have....and what an adorable little girl, too. Have a blessed Friday!

  3. Love the pictures, I love looking at homes. Good luck with everything, visiting from SITS.

  4. Sounds like a beautiful week. Good for you for taking some time to feed your soul. And best wishes that you will find the answers you seek. Medical hunting is awful. Sorry.

    Happy Sharefest. I hope you have a lovely weekend.

  5. Sounds like an absolutely lovely week! Such great photos too!

  6. What a fun post! I love all of her different hats! Thanks for sharing your story.

  7. I love those days where we just "be," where we just relax into the day and let time be marked my sunrises and sets. I pray your new week goes well and that your prayers are answered in a way that brings peace to your heart.

  8. new follower from the blog hop!Lovely blog you got here!Have a great weekend!http://www.erika-shineon.com/

  9. This is a lovely post full of appreciation for the little things in life. I post about the little things I am grateful for every Saturday - it's so important (I also add in a whole bunch of kitties just for kicks!)

    Good luck with the tests and everything and I hope the docs keep on top of your condition.

    Sarah @ A Cat-Like Curiosity

  10. You have a wonderful blog!! I'm your newest follower from the “Thee Networking” blog hop - this is my blog if you wanted to follow back: godsgrowinggarden.com

  11. beautiful words. so glad you found me, now i can follow you on this journey. praying everything turns out alright!

  12. Thanks for stopping by His Pen on My Heart. You have a beautiful little girl and a very nice blog. I have read a little about your health and hope that you live long in peace. Prayers for a happy holiday!

  13. That top photo is the most adorable thing ever! i want a fox hat for myself!


  14. I love what your weekend said to you - perfect. Visiting from I Love My Post.

  15. Oh my goodness, that fox hat is fantastic!! W're starting a house search soon, and I know what you mean by the thrill!! Fingers crossed for you and all your tests and labs. Found you through "I love my post". Hope your weekend continues to be wonderful!

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  17. Your blog is adorable and I love the photo's you posted especially the one with the fox hat. I found you through "I love my post", I would love it if you would follow me back.
    @ Queen's Tale

  18. This was a great post! stopping by from i love my post

  19. Love love love these adorable photos. What a cutie!