Did you know that because Cystinosis is such an ultra rare disease, we don't receive government funding or anything like it? Better treatments, more knowledge...it is all up to us; the people living with the disease and amazing family and friends. We create our own hope. We create our own joy. We create our own future. We create our own story.
Be a part of something truly spectacular today and purchase a set of this fun and meaningful bracelet collection I designed with The Shine Project. 25% goes toward the Cystinosis Research Network. Please pass this along and share the love. ❤
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