tag:blogger.com,1999:blog-1500070362960605173.post8386740479252319488..comments2024-03-09T01:37:51.982-07:00Comments on today is a miracle: Love & Other Drugsahappygirlhttp://www.blogger.com/profile/15125801880603246127noreply@blogger.comBlogger30125tag:blogger.com,1999:blog-1500070362960605173.post-36532478039708297112011-01-23T18:46:03.506-07:002011-01-23T18:46:03.506-07:00Wow, Tahnie, I don't even know what to say to ...Wow, Tahnie, I don't even know what to say to this. I couldn't imagine. Your daughter is truly blessed to have you has a mother and I'm sure that you'll teach her to live each and every day to the fullest...something which most of us take for granted.<br /><br />Stopping by from the Blog Frog.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-33910425178634927982010-12-30T15:34:10.129-07:002010-12-30T15:34:10.129-07:00Wow, thank you for being so honest. I can't im...Wow, thank you for being so honest. I can't imagine what you must deal with on a day to day basis but thanks for trying to help us understand what it is like for you and many others through your words. Your daughter was given to you, specifically chosen as her mother, what a blessing. Keep your courage and hope and thank you for letting some random people into something so intimate!Anonymoushttps://www.blogger.com/profile/07349777913626385468noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-84794728469790962692010-12-19T21:06:18.989-07:002010-12-19T21:06:18.989-07:00I hadn't heard of Cystinosis before but I admi...I hadn't heard of Cystinosis before but I admire you for the way you seem to deal with it. I haven't seen that movie but it sounds like one I would love.Venassahttps://www.blogger.com/profile/07734884129417163103noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-49590796164609228032010-12-18T17:16:03.032-07:002010-12-18T17:16:03.032-07:00I have no frame of reference for this, but I'm...I have no frame of reference for this, but I'm so glad I read about your experience, because it opens up my eyes to a whole nother world. Thank you for sharing this!Melissa_Raehttps://www.blogger.com/profile/08378109828025866012noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-44938556112038270222010-12-16T21:07:49.108-07:002010-12-16T21:07:49.108-07:00I have no idea what lies in chronic physical pain;...I have no idea what lies in chronic physical pain; but I do know the deep ache of chronic spiritual pain. No the same, but then not all that different either. <br /><br />I love the comment you made about living today with passion because we won't ever know what comes. I ask my kids each and every day if they lived their lives well---did they love and serve and honor and protect? And each morning we pray that God gives us the strength to do so. <br /><br />Thank you for the reminder here!<br /><br />Many blessings,<br />LindseyLindsey @ A New Lifehttps://www.blogger.com/profile/03332754702040074123noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-48669802200586832912010-12-16T18:46:44.564-07:002010-12-16T18:46:44.564-07:00Well, let me just start by saying that I haven'...Well, let me just start by saying that I haven't seen the Deathly Hallows yet either and I feel like I can barely stand that we haven't found a babysitter yet. So, there's that we have in common.<br /><br />As for the other - oh sweet friend - what a burden for any mama to carry. To be sick, and not only worry about one's self but about one's kids and how it all impacts them. My own mom died when I was 18 from leukemia. And it shapes our stories, for better or for worse. But mostly I think of the better because I see how God has sifted and refined and healed us in ways we didn't know we needed. I pray that you all find that on your journey. It sounds like you are. It sounds like you could teach us a thing or two about it all. And therein lies the victory.<br /><br />Thank you for sharing those lessons and not keeping them to yourself.<br /><br />Warmest blessings<br />Lisa-JoLisa-Jo Bakerhttps://www.blogger.com/profile/05085393066898328168noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-28044156636249960282010-12-16T18:40:16.265-07:002010-12-16T18:40:16.265-07:00This is an amazing post Tahnie. I have no desire ...This is an amazing post Tahnie. I have no desire to see the film because I am not into "chic flicks" and now I really don't want to see it because of the sadness factor. Ever since having kids sad movies take on a whole new meaning. I can't even watch apocalypse movies or I am a wreck. But for you it must be 100 times harder. You have such a positive attitude despite everything. <br /><br />I am sending hope and hugs your way. You will be there for your daughter for many, many years.MommyToTwoBoyshttps://www.blogger.com/profile/10221699039927615538noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-75894983902515640232010-12-16T16:59:57.544-07:002010-12-16T16:59:57.544-07:00Such a touching story. I don't fully know what...Such a touching story. I don't fully know what Cystinosis is but I plan to go find out right now. Thank you for sharing your story! Much love to you! May the Lord bless you with many years!Lauren Delainehttps://www.blogger.com/profile/06992185662542598747noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-52953892643339956612010-12-16T15:45:14.277-07:002010-12-16T15:45:14.277-07:00Chronic illness is NO fun and I say that as a mama...Chronic illness is NO fun and I say that as a mama with experience. But, it does bring a fresh and unique perspective on life. Thank you for sharing your storyMelissa, Multi-Tasking Mamahttps://www.blogger.com/profile/04552463538625125742noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-16449375637696732062010-12-16T12:50:22.262-07:002010-12-16T12:50:22.262-07:00I have never heard of this, either, and I, too, am...I have never heard of this, either, and I, too, am glad to be made aware. God bless you for your beautiful heart, and your willingness to share with us all.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-7267063739341234422010-12-16T08:20:11.038-07:002010-12-16T08:20:11.038-07:00wow. beautiful. i have no other words. thank you f...wow. beautiful. i have no other words. thank you for this vulnerability and beauty.Andreahttps://www.blogger.com/profile/10426204374410735670noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-77169343148038427712010-12-16T04:47:06.196-07:002010-12-16T04:47:06.196-07:00Just stopping by from Gypsy Mama (well and I stopp...Just stopping by from Gypsy Mama (well and I stopped by on Kelly's Tour of Homes too!) Thank you for making us aware of your illness and how we can pray for you! Blessings to you and what a sweet little girl you have!Tina @ Girl Meets Globehttps://www.blogger.com/profile/08587907664334608623noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-21841266934024057122010-12-16T02:05:21.242-07:002010-12-16T02:05:21.242-07:00This is lovely. Thank you for sharing your heart. ...This is lovely. Thank you for sharing your heart. Your daughter is lucky to have a mama like you. :)Sharonehttps://www.blogger.com/profile/17972215578612285738noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-4579927133830073652010-12-15T23:08:21.776-07:002010-12-15T23:08:21.776-07:00Over here from Gypsy Mama. What an honest and bra...Over here from Gypsy Mama. What an honest and brave writing. Now I must cruise through the rest of your blog!<br />Elizabeth<br />http://www.justfollowingjesus.comelizabethhttps://www.blogger.com/profile/06572872315082254364noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-7792557250509370842010-12-13T21:41:39.458-07:002010-12-13T21:41:39.458-07:00I saw this one! Didn't have a clue what it was...I saw this one! Didn't have a clue what it was about, but I did like it. Not a typical story line! I would recommend it!<br />Bernice<br />http://livingthebalancedlife.com/2010/six-steps-to-a-saner-christmas-part-2/Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-31453598616098782342010-12-13T19:37:09.388-07:002010-12-13T19:37:09.388-07:00Beautiful post.Beautiful post.Anonymoushttps://www.blogger.com/profile/00006137334470854259noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-78844504081046012442010-12-13T12:02:05.247-07:002010-12-13T12:02:05.247-07:00omg i am way too emotional for those types of movi...omg i am way too emotional for those types of movies. <br />I will pray for you.<br />Maggie<br />http://passionatelyartistic.comMaggie Lamarrehttps://www.blogger.com/profile/14194924763185547798noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-3349492133374114202010-12-12T21:37:41.810-07:002010-12-12T21:37:41.810-07:00Great post. You're going to make me cry, thoug...Great post. You're going to make me cry, though!<br /><br />I've been healing from brain surgery for awhile (feels like forever) and I want to watch this movie but I know that it's going to bring back all of those emotions that surrounded the whole turmoil of my aneurysm and the craziness that surrounded it. I was *just* married when it all went down so it was really a heavy thing to navigate. Happiest time of my life/scariest time of my life.<br /><br />I can't imagine having to make those decisions with a child. I don't know if I would have been brave enough to face it. Especially on those days when you just want to stay in bed and ignore the world all day? You can't with kids.<br /><br />You're brave and beautiful and raising your girl with your grace — that's a miracle onto itself.<br /><br />Found you through SITS. Glad I did!txterryohttps://www.blogger.com/profile/02572840288932544516noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-85673890794072218602010-12-12T19:49:12.406-07:002010-12-12T19:49:12.406-07:00You're truly inspiring,and no, I never did hea...You're truly inspiring,and no, I never did hear of cystinosis. You sure beat the odds and are amazing, you are definitely meant to live a long life.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-33494225294015957792010-12-12T18:40:16.682-07:002010-12-12T18:40:16.682-07:00Beautiful post... praying for you that you'll ...Beautiful post... praying for you that you'll have many more years with your daughter.Anonymoushttps://www.blogger.com/profile/17036036602583454225noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-42619390680363123722010-12-12T06:55:08.987-07:002010-12-12T06:55:08.987-07:00Beautifully said. Those ideals about the magic of ...Beautifully said. Those ideals about the magic of life are things we can all hope to instill in our children.Vicki @ Grams Made Ithttps://www.blogger.com/profile/14830960886130900689noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-7545415243828653702010-12-11T18:42:44.147-07:002010-12-11T18:42:44.147-07:00Lovely writing, Tahnie. Thank you for writing this...Lovely writing, Tahnie. Thank you for writing this post. It has helped me see more beauty in my day.Alison Golden - PaleoNonPaleohttps://www.blogger.com/profile/04559213835737121749noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-69051123819511419052010-12-11T16:11:54.295-07:002010-12-11T16:11:54.295-07:00Hopped over from Blog Frog. So glad I did. Your t...Hopped over from Blog Frog. So glad I did. Your transparency has helped me to put my own issues in better perspective. Thank you so much! Will say a prayer for you & your family!<br />Carrie <br />http://www.wahmto5.comMdmDragonflyhttps://www.blogger.com/profile/04775838293225830561noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-63479942115778928062010-12-11T13:15:49.408-07:002010-12-11T13:15:49.408-07:00Beautiful post! I was interested in your movie rev...Beautiful post! I was interested in your movie review - but this was so much more! You have an incredible attitude and wisdom about life. You'll be in my thoughts and prayers. So happy to have found you through Blog Frog.Deb Chitwoodhttps://www.blogger.com/profile/16665549481411417908noreply@blogger.comtag:blogger.com,1999:blog-1500070362960605173.post-17685154377552558072010-12-11T10:35:02.436-07:002010-12-11T10:35:02.436-07:00Such a lovely post. Need a new box of tissues.Such a lovely post. Need a new box of tissues.Alessandra@ Tribal Timeshttps://www.blogger.com/profile/04659156934281438508noreply@blogger.com